Font size:  A  A  A 
Sitemap Contact      
Logo Citizens for democracy Logo EEA Grants Logo Stefan Batory Foundation Logo PFDiM
← back to the search

“With Tourette Around Poland” – Program Against Exclusion Of People With Tourette Syndrome

Counteracting exclusion Completed
Szpitalna NGO Center, Warszawa, Poland
2015-02-02 - 2016-04-30
344 902,14 PLN
310 422,14 PLN
health/healthcare, voluntary service
Project description
Tourette Syndrome (TS) affects 1% of population ("Zespół Tourette'a Fakty", 2013). It’s estimated that in Poland there’re about 50,000 of such people. The Association’s research proves that level of knowledge about it is insufficient, both among professionals and in the society. People with tic disorder face many problems and are discriminated. People with severe symptoms are totally excluded from social life and normal functioning. Thus, social actions are necessary to incorporate these persons in society.
The main aim of the project was to counteract exclusion of the people with TS and their families through preparing the to become local leaders and aiders of the social activities.
Thanks to the project realization co-operation with 14 leaders and 27 local activities aiders, who organized 35 local actions. 88 professionals (doctors, teachers, psychologists) were trained on TS.
The activities included recruitment and preparation of volunteers (mainly ill people and their families), who took part in 35 local activities as organizers, co-organizers or participants. Local actions were of various nature, depending on needs and volunteers’ creativity, e.g. trainings for Teachers’ Councils, participation in Live Libraries, presentation of materials during conferences, family picnics, volunteers in the project T-shirts taking part in running events, lectures, talks and information campaigns. 12 trainings on TS were conducted for various groups: volunteers, the ill, families, educators, psychologists, doctors, teachers. Educational leaflet and a short information film with the ill and professionals were produced. The first Polish book "Oswoić tiki. Praktyczny poradnik o zespole Tourette'a" was published.
Beneficiaries of the project were 41 leaders and aiders and about 2950 participants of local activities.
Fundacja Rozwoju Wolontariatu helped to create and coordinate of the network of volunteers. Federacja NGOs Centrum Szpitalna provided access to premises and office facilities. Association Norsk Tourette Forening supported the project with their experience in running activities for persons with TS.
We use the grant for capacity building